It has definitely been a roller coaster ride for me & my daughter. It has not been easy explaining to people what my daughter has. So I tend to lay off that subject with people. I'd feel at ease talking to someone about this who can actually relate & understand the situation my daughter is going through.
My plan is to blog as often as I can. I want to inform people of what to expect of this condition & introduce this, to those who are new to this. To the parents that have already gone through this stage, it would be beneficial to other parents & I to be informed. So please feel free to leave comments on what we should expect in the upcoming future.
Eventually, everything becomes a routine, so the calm after the storm will come.